Comments on: I Got Lupus, But Lupus Doesn’t Have Me http://www.emmyrose.com/archives/383 My Endless Journey in Living With Lupus Thu, 18 Mar 2010 08:32:38 +0000 http://wordpress.org/?v=2.7.1 hourly 1 By: jicksonchackovarghese http://www.emmyrose.com/archives/383/comment-page-1#comment-4829 jicksonchackovarghese Fri, 12 Feb 2010 02:25:26 +0000 http://www.emmyrose.com/?p=383#comment-4829 I hate lupus. My grandma recently passed away because of complications of it. I HATE LUPUS!!! I hate lupus. My grandma recently passed away because of complications of it. I HATE LUPUS!!!

]]> By: Monica http://www.emmyrose.com/archives/383/comment-page-1#comment-3736 Monica Thu, 17 Dec 2009 22:44:23 +0000 http://www.emmyrose.com/?p=383#comment-3736 I'm glad everyone on here seems to understand the reason this disease happened to them because I am having a very difficult time understanding why this happened to me. I HATE LUPUS!!! It has changed my life in ways I can't even begin to explain. For starters I get these disfiguring skin lesions on my body including my face which have made me become a slave to makeup as I try to cover them up. It completely took out my kidneys so now I’m on dialysis. I have high blood pressure and anemia now. I've been hospitalized so many times for complications with dialysis catheters, I might as well have my own wing there. And don't even get me started on the wonderful side-effects of Prednisone. I don’t know why this had to happen to me. I’m only 27 years old and I’ve had to face things and make many difficult decisions about things that most people my age don’t even have to think about. It’s also been murder on my social life. It’s been my experience that people my age don’t want to hang out with the chick on dialysis. And I have yet to meet the man who gets turned on by a woman with a chemo catheter in her chest and a dialysis catheter hanging out of her belly. I know I should be glad that I’m still alive (and I am) but what’s the point of that if I’m sick, disfigured, and alone. I’m glad everyone on here seems to understand the reason this disease happened to them because I am having a very difficult time understanding why this happened to me. I HATE LUPUS!!! It has changed my life in ways I can’t even begin to explain. For starters I get these disfiguring skin lesions on my body including my face which have made me become a slave to makeup as I try to cover them up. It completely took out my kidneys so now I’m on dialysis. I have high blood pressure and anemia now. I’ve been hospitalized so many times for complications with dialysis catheters, I might as well have my own wing there. And don’t even get me started on the wonderful side-effects of Prednisone. I don’t know why this had to happen to me. I’m only 27 years old and I’ve had to face things and make many difficult decisions about things that most people my age don’t even have to think about. It’s also been murder on my social life. It’s been my experience that people my age don’t want to hang out with the chick on dialysis. And I have yet to meet the man who gets turned on by a woman with a chemo catheter in her chest and a dialysis catheter hanging out of her belly. I know I should be glad that I’m still alive (and I am) but what’s the point of that if I’m sick, disfigured, and alone.

]]> By: Sheila/Bluebirdy http://www.emmyrose.com/archives/383/comment-page-1#comment-3292 Sheila/Bluebirdy Fri, 20 Nov 2009 22:24:14 +0000 http://www.emmyrose.com/?p=383#comment-3292 Maybe having lupus first makes us need to stay in a cocoon to protect ourselves and absorb the scock of how horrible this disease is. It is more painful than most cancers, and lasts many more years, and doctors don't treat us very well in general. Then as soon as we start to accept it and let the Lord into our lives, we come out of the cocoon, and become the butterfly that is the symbol for lupus. Sometimes sick and damaged butterfly, but a butterfly, emerged from the old self. Butterflies are very delicate, like our health. It has more symbolism than just the butterly rash on our face. Bless you EmmyRose, Sheila .-= Sheila/Bluebirdy´s last blog ..<a href="http://bluebirdyliving.blogspot.com/2009/11/happy-thanksgiving-to-my-american.html" rel="nofollow">HAPPY THANKSGIVING TO MY AMERICAN FRIENDS</a> =-. Maybe having lupus first makes us need to stay in a cocoon to protect ourselves and absorb the scock of how horrible this disease is. It is more painful than most cancers, and lasts many more years, and doctors don’t treat us very well in general. Then as soon as we start to accept it and let the Lord into our lives, we come out of the cocoon, and become the butterfly that is the symbol for lupus. Sometimes sick and damaged butterfly, but a butterfly, emerged from the old self. Butterflies are very delicate, like our health. It has more symbolism than just the butterly rash on our face.
Bless you EmmyRose,
Sheila
Sheila/Bluebirdy´s last blog ..HAPPY THANKSGIVING TO MY AMERICAN FRIENDS My ComLuv Profile

]]> By: Singer7 http://www.emmyrose.com/archives/383/comment-page-1#comment-3281 Singer7 Thu, 19 Nov 2009 18:55:14 +0000 http://www.emmyrose.com/?p=383#comment-3281 I am so sorry that you have Lupus. I love the fact that ur so positive and brave over this whole ordeal. It's true that with everyday that ur living is a blessing and a miracle. I hope and pray that that disease will go away....and with ur spirit, faith, people around you of whom you love, and Allah {God}, I think it will. Take care of urself! P.S-Whenever u have time, check out my blog website to learn more about me!! http://greenorange-singer7.blogspot.com/ I am so sorry that you have Lupus. I love the fact that ur so positive and brave over this whole ordeal. It’s true that with everyday that ur living is a blessing and a miracle. I hope and pray that that disease will go away….and with ur spirit, faith, people around you of whom you love, and Allah {God}, I think it will. Take care of urself!

P.S-Whenever u have time, check out my blog website to learn more about me!!
http://greenorange-singer7.blogspot.com/

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