It’s been eight difficult years with Lupus and I used to say that I am waiting for a miracle, it is only on my recent birthday celebration that I finally realize that everyday of my life is already a miracle in itself. I know that I am blessed and it is by the grace of God that I am once again starting to recover from my longest flare ever… when almost everyone thought it was the end of the line for me, that finally lupus had won… lupus may have crippled and ruined my life, my dreams and probably my future but it didn’t destroy my spirit. I know in my heart that no matter how painful my struggles are, God is way much stronger than anything else and with Him, I know I can do anything…
November 20th, 2009 at 2:55 am
I am so sorry that you have Lupus. I love the fact that ur so positive and brave over this whole ordeal. It’s true that with everyday that ur living is a blessing and a miracle. I hope and pray that that disease will go away….and with ur spirit, faith, people around you of whom you love, and Allah {God}, I think it will. Take care of urself!
P.S-Whenever u have time, check out my blog website to learn more about me!!
http://greenorange-singer7.blogspot.com/
November 21st, 2009 at 6:24 am
Maybe having lupus first makes us need to stay in a cocoon to protect ourselves and absorb the scock of how horrible this disease is. It is more painful than most cancers, and lasts many more years, and doctors don’t treat us very well in general. Then as soon as we start to accept it and let the Lord into our lives, we come out of the cocoon, and become the butterfly that is the symbol for lupus. Sometimes sick and damaged butterfly, but a butterfly, emerged from the old self. Butterflies are very delicate, like our health. It has more symbolism than just the butterly rash on our face.
Bless you EmmyRose,
Sheila
Sheila/Bluebirdy´s last blog ..HAPPY THANKSGIVING TO MY AMERICAN FRIENDS
December 18th, 2009 at 6:44 am
I’m glad everyone on here seems to understand the reason this disease happened to them because I am having a very difficult time understanding why this happened to me. I HATE LUPUS!!! It has changed my life in ways I can’t even begin to explain. For starters I get these disfiguring skin lesions on my body including my face which have made me become a slave to makeup as I try to cover them up. It completely took out my kidneys so now I’m on dialysis. I have high blood pressure and anemia now. I’ve been hospitalized so many times for complications with dialysis catheters, I might as well have my own wing there. And don’t even get me started on the wonderful side-effects of Prednisone. I don’t know why this had to happen to me. I’m only 27 years old and I’ve had to face things and make many difficult decisions about things that most people my age don’t even have to think about. It’s also been murder on my social life. It’s been my experience that people my age don’t want to hang out with the chick on dialysis. And I have yet to meet the man who gets turned on by a woman with a chemo catheter in her chest and a dialysis catheter hanging out of her belly. I know I should be glad that I’m still alive (and I am) but what’s the point of that if I’m sick, disfigured, and alone.
February 12th, 2010 at 10:25 am
I hate lupus. My grandma recently passed away because of complications of it. I HATE LUPUS!!!
March 11th, 2010 at 8:08 pm
Thank you so much for your inspirational message. I was diagnosed recently after a few years of suffering and really no one understanding the pain and fatigue this disease brings. I was told I had lyme disease, possible ms, and was finally given a diagnosis of fibromyalgia from a doctor at Mayo Clinic.!!!! But guess what, 3 months later after getting sicker, I started having rashes and hallmark symptoms of lupus. I thank god for the rashes only because they could finally pinpoint the problem, plus a positive ana. Anyway thank you, you made me feel so much better about things. I really admire your strength and courage. I know god has plans for us and really, I think I have found my real self from this disease. Thank you again.
April 28th, 2010 at 10:31 am
I have Lupus, but Lupus doesn’t have me either! I was diagnosed 26 years ago and I too have had my bouts with Lupus. I am a walking miracle because the Most High God allowed me to have five beautiful children and I have not had to take medicine in over six years now. God is my everything and I would have never made it without him. Keep praising him and giving him the glory and he will see you through. Be blessed, your sister in Christ.