I Want Out
Monday, August 18th, 2008Last Saturday I got my laboratory results and since I feel better I was expecting that somehow my condition improved. Well, I’m wrong. It appears that I am sicker than ever and my 24-hr urine test revealed that I barely have fifty percent functioning of my kidneys, I guess my lupus nephritis had emerged once again. My rheumatologist prescribed new medicines and I have to deal with one of my greatest fears again, to take a higher dose of steroids once again. I feel bad because I worked hard to really lose weight and now that I’m back with a higher dose of steroids I’ll be gaining all those weight again and not to mention it can cause swelling of my feet that can lead me back to not being able to walk again.
Well, I guess I need to say goodbye to the good days. I feel like I’m back at square one and no matter how hard I try or how earnestly I pray I keep on getting sicker and sicker. It’s breaking my spirit and sometimes I just want to fall apart. I am trying so hard to stay calm and optimistic. I’ve been telling myself that I’ve been through worse so what the heck am I scared about. I tried to be strong but when I’m alone I can’t help but feel miserable, I am worried what if I don’t get better, what if no matter what medication I try my kidneys still manage to fail and I have to undergo dialysis, I don’t know if I’m strong enough to handle anymore bad news.

This journey with lupus is just a terrifying walk. I sometimes wish I’m just riding in a bus where I could just yell at the driver STOP, I JUST WANT TO GET OUT! I wish it could be that simple.


























